https://www.runforemilia.ca/emilias-visitors-1 daily 0.75 2022-02-14 https://www.runforemilia.ca/emilias-visitors-1/a1hkjwlmj0a01zcq0apilkwz86q1b0 monthly 0.5 2022-02-14 https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616650642-MC79HGGAWN6DGPMVHW6M/IMG_3984.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616652533-WRVRF1OZUV2DSMI1MI6O/IMG_4363.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616653991-54HAY8MGXXFQKWLIFF65/IMG_4105.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616655992-SDJ01NN7LJ2QGWAD95WL/IMG_5429.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616658607-MU7G969WRS685191KW64/IMG_6315.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616661734-84VN6ZCGAH04DROG2G3O/IMG_6304.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616663563-W6EVEVVCBK0QGLRJOT03/IMG_6184.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616664963-8WNCN524TO5EGFJM4ZLT/IMG_5579.jpeg Remembering Emilia - Emilia https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1644616667787-RC5PWKBTT71MGNZX0WHG/IMG_4714.jpeg Remembering Emilia - Emilia https://www.runforemilia.ca/home daily 1.0 2025-08-18 https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629513888795-FQSKU0XR3RC9JVS5ULHW/IMG_9674.jpeg Home - Run #ForEmilia Emilia Piper was a Sick Kids warrior for all 16 months of her life. She and her family were supported by the wonderful doctors, nurses, therapists, and social workers at Sick Kids. Emilia was blessed to be treated at one of the best children’s hospitals in the world. Her legacy lives on as we fund life-saving research #ForEmilia. https://www.runforemilia.ca/contact daily 0.75 2022-02-14 https://www.runforemilia.ca/emilias-story daily 0.75 2022-08-11 https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629760550600-B0VKPD7OOIFCT6WL2KRI/IMG_0098.jpeg Emilia’s Story - Emilia was born on January 20th, 2020 in Guelph, ON with a Congenital Diaphragmatic Hernia (CDH) and multiple Congenital Heart Defects (CHDs). She was rushed to the Hospital for Sick Children in Toronto where she had surgery at four days old to repair the hernia. https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629761026282-T1TIAIPTKW6BPINYEUMT/IMG_5424.jpeg Emilia’s Story - Emilia was a happy little girl but she still required a nasogastric (NG) tube to eat. She breathed too fast due to her heart defects and would choke on her milk. She went to the hospital for heart failure due to silent aspiration. She struggled to gain weight for a few months but eventually started growing. https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629761392204-849JV16JHBUSL0QRMLL7/IMG_0351.jpeg Emilia’s Story - Her second surgery for her gastric tube allowed her to thrive. Emilia began eating food and was able to drink without choking. She did so well that her doctors encouraged her to wean from her feeding tube after only three months. https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629761594725-5KZMC2CQQYFAUVS1WEHP/IMG_4714.jpeg Emilia’s Story - Most of Emilia’s heart defects resolved on their own and she was finally living a normal life. Emilia enjoyed blueberries, walks, ice cream, french fries, sand, flowers, dancing, Moana, and giving kisses. She even managed to get off her feeding tube for the last month and a half of her life. https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629761802481-EKSR0TNIXJ2VM3L401G8/IMG_6315.jpeg Emilia’s Story - This little girl was brave until the very end. Emilia had a build-up of scar tissue from her previous abdominal surgeries that caused her to go into the hospital one last time for a bowel obstruction. Although the surgery went well, Emilia developed an infection at the hospital and died of sepsis on June 4th, 2021. https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629767896989-PNZDF9BSZ1SU8GGWGUXD/IMG_6304.jpg Emilia’s Story https://www.runforemilia.ca/who-we-are daily 0.75 2025-08-11 https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629767596475-C6Z4ARJ3IUDVLY7P1O07/IMG_5829.jpg Who We Are https://www.runforemilia.ca/join-her-story daily 0.75 2025-08-11 https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629768411946-2CGF2CLWVMDSXAWDA7Z7/IMG_5665.jpg Join Her Story https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1629768727709-Y0YOSQPM1B9ELHV078IA/IMG_5642.jpg Join Her Story https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/89ff7f8c-c619-41c1-be53-ec095ab461db/IMG_5575.jpg Join Her Story https://www.runforemilia.ca/cugs daily 0.75 2022-08-11 https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1635622646014-IM8NODWTUKIKTXMXHOVG/IMG_20210116_190330.jpg CUGS - Cardiac Urogenital Syndrome It was not until after Emilia’s genetic testing that we finally had a name for the long list of problems our daughter was born with. Cardiac Urogenital Syndrome (CUGS) is a recently defined syndrome. The technology required to diagnose a patient has only existed since 2016. The syndrome has a long list of potential congenital defects but the three most common ones are: Heart defects Diaphragmatic hernias Reproductive malformations Emilia is the 19th reported case worldwide. This condition is caused by a genetic mutation of the MYRF gene. Little is known about this syndrome since it is so newly defined. Hospitals that do research into these symptoms such as Sick Kids Toronto need your donations so these children can manage their symptoms and lead long, healthy lives. The vast majority of cases do not survive past infancy. More research needs to be done. https://www.runforemilia.ca/5k-for-emilia daily 0.75 2025-09-28 https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1635621447681-FR4OEQUWHWMNS572M5Q0/244509378_10159848490461202_2961124853667053208_n.jpg 5K for Emilia - 5K for Emilia 2025 We are prepping to have our 5th annual 5K for Emilia walk/run we have officially raised over $50,000 for Sick Kids! We welcome all participants of all ages and abilities! Whether you can walk, run, or crawl all 5K or just 1K… We have a beautiful path for you through Riverside Park in Guelph. We run rain or shine! This year we also have a Silent Auction online! Make sure to check out the items up for grabs. We will close the Auction at 5PM EST, so make sure to get your bids in! Please don’t forget to sign up for our walk/run on Sep 28th, 2025 at 3:00 PM at Riverside Park, Guelph! Our new goal of $10,000 will go directly towards the Pediatric Intensive Care Unit at Sick Kids Toronto. No family wants to end up in this unit, however, the compassion and love that is shown for these children is incomparable. https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/f4c3877d-70d5-4242-af11-c525165e3b8f/Bardo.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/1444ce64-6a23-4c95-85ca-157495467185/bookshelf.PNG https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/40b36210-21a1-4fdd-934f-67f41718d379/mariaevelyn.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/a3f11d4b-6de2-4fc7-9058-1bfdd0e03ef8/woolwich+fine+yarns.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/40aaa02d-aca7-4078-b233-afacf5503693/COG_Logo_Colour_300dpi_11inches_wide-1.jpg https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/c22ead8c-9cbc-4d89-b7b7-bbb010e00d66/dankelley2.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/2354f221-f0f3-4fab-b08e-4e7dabe1165b/marketfresh.PNG https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/45e5e4e5-7679-46b3-9f79-1e2e2e72b3ea/Wellington-brewery-logo.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/f02f1a9f-f29e-4814-adc3-c695e914a016/platosss.jpeg https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/e9ead0f3-0635-44ba-bfb3-4b0c65e6151d/foodbasics.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/6b76d5c6-e1b2-4557-af9f-37b4243d170b/images.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/f7c1cfa8-d709-441d-8acc-3686d76d193a/pc.jpeg https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/6ca9e5b2-e0ab-4552-80eb-88639c575e09/HandandStone.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/8c3d1e14-cad6-4b5f-a185-3cb06bad10b8/starbucks.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/5bf8e4c7-eefd-42ff-8a7e-53d37bea101b/northernvillage.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/06c7ad23-eda1-40ed-8934-510e1d0ac5f4/NGC+Logo+Email+Signature+%282%29+%282%29.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/83a7ac92-e026-4674-a14e-73f3237de3c0/Crump.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/09eb2ef1-cba7-4afe-a094-247348961dc2/ECW_Press.jpg https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/defc4674-ad93-4682-b44f-26cb9146bf77/jocelyn.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/e528458c-0a72-4359-a1a9-e240596514bf/salondiloreto.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/3adeb9bf-3d3e-47cc-9313-240620d6d744/Acqua.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/fba716b4-7fcf-4d33-9d47-784856e0c792/OUAC.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/16de6bb5-a676-4f19-adfd-4eebb107935d/munsch.png https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/b967eb5c-fc07-467c-84ef-055f9b57a981/Lucent+Glass.webp https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/6e1ac58d-2e90-4136-a7b5-f86102eec4b1/_logo_playwithclay_pluspartner_1500x600.jpg https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/6531f3a1-e6b7-4cf1-8127-f963fe3e119d/stonerdmall.PNG https://images.squarespace-cdn.com/content/v1/611dcf1554f0160ba10a63f6/c8c9645e-b7fe-4fbd-8b25-faf1468e0cdd/IMG_6396.jpeg 5K for Emilia https://www.runforemilia.ca/silentauction daily 0.75 2025-09-25